As you have read becoming disabled really sucks.
This is not something I asked for in prayer but I understand God has a different plan for me that what I have planned for my life.
With the lack of support from our system (disability, ssi, family services) I have had to learn to go without a lot of things in life now.
Vehicle- my vehicle was repossesed. Wachovia Dealer Services said they would wait for a payment and later in the same day they took it anyway. Now there is no way I can get my truck back and not sure when I can get another vehicle. I do a lot of walking now.
Computer - first my monitor blew up and finally a friend gave me a monitor and all was working well. Then the hard drive decided to take a dump and mow it will not boot up so I have no access to a computer unless I walk 7 miles (1 way) to the library. I also can use my phone but have very limited Internet abilities on line.
Newspaper - cancelled for a couple reasons. Save money and I was depressed reading all the bad in the world everyday.I have done without the following for the past 7 months and not sure when I can get any of the services re-started.
Home phone - cancelled to save money
cable - cancalled to save money
Internet - cancelled to save money.
**By cancelling the phone, cable and internet service has saved a total of $120.00 a month
A/C only used now when necessary. Which has saved a lot power bill has went down from 350 a month to 140 a month. I have the air off about 12 hours a day and would leave it off longer but must have the air on when starting/ending dialysis.
Eating - stop eating out all together. Which was good for health reasons and save money
Vacations - have not been on a vacation in many, many years. All of my income was used to purchase medications. I think even though working at Universal Studios was an awesome job it reminded me of the days that my step son and I would spend there. So it was like I was reliving a vacation at work but even during the time I worked there I was working 2 full time jobs in order to make enough money to buy medication. For that matter over the last 5 plus years I have always had to work 2 jobs or a lot of overtime in order to be able to afford the medications. For many years I worked 7 days a week in order to buy medications.
People state you have insurance they cover your medications, right?
Suppose to is all I can say. For example when I became disabled I was told I could get a months refill for $2.00. So I dropped off 3 medications for refill and the following day I was told the total $259.99. So much for the $2.00 refills.
Also even as we speak my insuance company just informed me that they would no longer cover some of my medications. As a dialysis patient these medications are necessary but now I'm going to have to go without.
There are a total of 4 medications my insurance refuses to cover right now. So I do without those medications.
The issues with medications could go on for a long long time but I will end it here and say please don't think that just because you have insurance that medication is no issue since insurance will cover it. Not true.
Credit score- goes down rapidly. Seems some bills were turned over to collections before I even got out of the hospital.
I had worked hard for years to repair my credit from the first transplant and a few years ago was able to my my truck and was on the right track to get credit back in shape and the. Illness strikes again and now my own bank will not even talk to me about a loan. I even went to Citi Financial and willing to pay a crazy interest rate to get help and they turned me down.
My own doctors office called one day and threatened to turn my account over to collections unless I paid the balance in full.
Then not to mention my apartment comex I live in, I have done everything in my power to keep rent paid and fell behind with the delays from the Salvation Army but have taken every penny I have to keep a place to live. These folks in management tell me to my face they will work with me and do anything they can to help as they state I'm an awesome tenant and they don't want me to leave and the following day they post a 3 day to pay or be evicted notice on my door. They don't even have the guts to knock on the door and give it to me, they stick it to the door and run. By the grace of God I have managed to always get the rent paid, it may be late but it gets paid.
And a lot of the rent came from help from friends and family.
This eviction process has went on for the last few months.
Even though friends have offered to let me move in with them, I hate to be a burden on anyone. With the amount of dialysis supplies I have delivered to my home monthly I also consume a lot of room and it would not be far to them to have to deal with all of this.
Entertainment – have cut all entertainment from my budget, no movie rentals and no trips to the parks, so now I walk and swim. Although the pool is starting to get pretty cold and may soon have to stop going to the pool.
I would not wish this on my worst enemy. My life has become a living "hell" and no one deserves to go through this.
I do believe in karma and many days I have to wonder what I have done so bad in life to deserve this. But at the same the same time I try my best to keep a positive attitude and try to find the good in this situation.
As the old saying goes what doesn't kill you will make you stronger.. With what I have been throught already I should be turning green like the Hulk any day now ....
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